I have to disagree! I freely mod a conservative sub in my spare time.

It has definitely not been taken over by fascist snowflakes.

As proof, you are welcome to come and see for yourself: ☆ kbin conservative community ☆

The full text includes a proposed severity scale by Whitney Dafoe.

Link to actual study: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome

This literally happened to me, only I lost way more than half my income.

It’s horrible, and frequently remembering the life I had is very painful.

I can’t work out what possible upside you think there is to this situation.

That sucks in terms of proving disability in your country (you would be eligible already in mine but since disability here is only half of minimum wage it’s not really the solution like it is where you are).

But it’s really fantastic that you are able to do so much!! That’s way better. You’re going to be able to work from home lying down. Lots of cool ideas in here.

I think you should still apply for disability every year. Maybe find a support group or organisation for people with broken necks/spinal injuries, they might know some aspects of the process.

Good luck to you. I know what it’s like to lose everything, and I really hope you are able to rebuild some kind of life for yourself.

A CPET is a cardiopulmonary exercise test. The 2 day CPET is when you get the test and then get it again 24 hours later.

People with me/cfs have different results than sedentary controls, so it’s a good way of helping prove disability.

If you didn’t know what ME/CFS is (myalgic encephalomyelitis) then you haven’t been diagnosed with it and none of this applies to you, but I thought it was worth mentioning in case you had.

Link to research press release: https://www.meduniwien.ac.at/web/en/ueber-uns/news/2024/news-im-februar-2024/chronic-fatigue-syndrome-number-of-patients-is-expected-to-double-due-to-long-term-effects-of-the-covid-19-pandemic-1/

You can also do temp work, English language teaching, proofreading, data entry.

You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.

I’m not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.

Tldr: more work on the Nanoneedle!

Speakers include Lucinda Bateman, Ed Yong, David Systrom, Susan Levine.

This is probably somewhat relevant to ME/CFS because of the role mitochondrial dysfunction appears to have in the disease.

Ugh, sorry that happened to you!

Have you been trying it?

there are a lot of unintuitive things going on with the science of climate change

But science isn’t intuition-based. It often comes to conclusions that are far from intuitive.

I think it worked!

If you have been diagnosed with this I suggest you seek a second opinion.

Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.

Multiple sclerosis used to have the same problem and was seen as “hysterical paralysis”.

Mr. Yong will share with us how he came to the subject of ME/CFS and long COVID and what has motivated him to dig so deeply and tenaciously into them. He will explain how he chooses sources to interview and how he prepares for those interviews. We will hear his thoughts on what is yet to be explored about ME/CFS from a journalistic perspective, and how science journalism contributes to changing perceptions. Mr. Yong’s presentation will be followed by an audience question and answer period.

Mr. Yong is a Pulitzer Prize-winning science journalist on staff at The Atlantic. In addition to his work for The Atlantic, Yong’s writing has been featured in National Geographic, The New Yorker, Wired, The New York Times, Nature, New Scientist and Scientific American. He is the author of two New York Times bestsellers—An Immense World, about the extraordinary sensory worlds of other animals; and I Contain Multitudes, about the amazing partnerships between animals and microbes.

Visit Ed Yong’s website to learn more and sign up for his newsletter.

This event is a part of the Association’s 2023 Annual Meeting of the Membership.
The fee for this event is $10 for Non-Members.

The meeting will be recorded for later viewing.

ET is the same as GMT -4 so this will take place 9-12 am GMT.

Their newsletter is here.